choices I don’t want to make
by Elouise
If you had gently hinted
just one short year ago
that today would find me
lost and bereft
I might have laughed
On the other hand….
To say my situation is
better than so-and-so’s
misses the point altogether
while denying reality
screaming in my feet
How to live with this
malfunction on the outside
and agony on the inside
challenges my educational
upbringing and experience
Daily and nightly reminders
pile on unavoidable witness
to the slow decay of this body
still struggling each day with
choices I don’t want to make
I haven’t posted regularly for what feels like an eternity. Actually, it feels like hanging in midair, waiting to find out how this will play out. Peripheral Neuropathy. My new ‘friend’, though I still don’t know the full picture. The day after Thanksgiving I’ll have an MRI with the hope that my neurologist will learn something new or at least helpful.
My focus today is on what I enjoy doing. Unfortunately, my feet like to remind me of what I don’t enjoy. Nonetheless, my new curriculum is interesting. Bottom line: What would I like to do right now? What brings me joy, so that I don’t even notice what my feet feel? (For example: looking at David’s Longwood Garden Photos; playing the piano, riding my indoor bike.)
In addition to two books I mentioned in an earlier post, I’m also reading a book by Mims Cushing (who lives with this disease) and Norman Latov, MD, her neurologist. Title: You Can Cope with Peripheral Neuropathy: 365 Tips for living a full life. It’s a bit dated, but the self-help pointers are ageless.
Bottom line: I feel myself becoming a ‘different’ person–not so driven, more laid back, grateful for small gifts of each day and for you.
Elouise♥
© Elouise Renich Fraser, 23 November 2021
Photo taken by DAFraser at Longwood Gardens, December 2015
my sister has that. best wishes for thanksgiving.
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Thank you for this comment. I don’t hear people talking about this malady very often.
Happy Thanksgiving to you, as well.
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You have my ❤ and prayers.
Keep doing what you enjoy doing. Keep taking one day at a time. What's that phrase used? New normal. I find that as my health has changed (for the not so good) over the years I have had to find ways to adjust to my new normal. 🙂
You will be on my mind and in prayers this week…especially on the 26th.
I will go with you for the MRI in spirit and in prayers. You will not be alone.
You are someone I am so grateful for, SweetElouise! Thank you!
(((HUGS))) ❤
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Oh, Carolyn…Thanks for your comment! One hour after I posted this piece, I received a call about my MRI. The woman in charge had just noticed that they’d scheduled me for a Friday–a day when they do NOT do MRI’s for peripheral neuropathy! She could only reschedule me for near the end of December!!!! Yep…definitely a new normal for this particular ailment (not the good kind of new normal you describe). So I took what I could get, hung up, had a few words to say to You Know Who, and then got on with the rest of the day. Right now I’m needing patience. It would be nice to have a little joy, too! 🙂 Actually, the more I read in my newest book (You Can Cope with Peripheral Neuropathy), the more I’m discovering how long this has been working on me and I didn’t have a clue what was happening (because back then it didn’t come with a lot of pain). Thanks for your prayers and encouragement. And Happy Thanksgiving!!! Plus hugs, of course. 🙂
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On going health issue will do that to us, slow us down, show us there are still things that are a blessing. I so get this post since I have and still live with a health issue getting worst but still hope for some relief coming my way. It matters not what the issue is, all will bring limitations and a need to trust.
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Thanks so much for your comment, Betty. Yes…getting older may mean getting wiser; it doesn’t always mean feeling better. I appreciate your comment about slowing down and discovering there are still blessings to be had, even in our limitations. I’m praying for your ongoing health issue, and wishing you a wonderful Thanksgiving!
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Please dont this this is a trivial comment (I am a huge fan of your writing and vulnerability) but this blog entry reminded me of Cat Steven’s “Moonshadow”. Perhaps the lyrics might be of use right now. 💕💪
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Hi, Janet! I just watched/listened to “Moonshadow” performed by Cat Stevens way back when I/we were very young! I loved it. And yes indeed, it offers a new way of announcing what I will NOT do in the future–if I ever lose this or that part of my beautiful, gorgeous body! I love the idea of having no more responsibility for what I can no longer do! 🙂 Thanks for sending the prompt! Wishing you a happy Thanksgiving!
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I adore you Elouise. You have so much to share with us and the world. Your adventure is just beginning!!! Your unfolding is inspiring!
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Thank you for book suggestions. Hoping they will explain current need for visits to podiatrist and concern for necrotic spots on left foot and sharp rapid needle like shooting pain on left foot.
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Dear David, I’ve been thinking about you a lot since I read your comment. I’m so sorry to hear about your foot issues. I don’t know for sure, but I’m guessing you’ll find some help in the books I’m reading. What’s hardest of all (for me) is beginning to realize how far back my problem began showing up, though in forms I never thought strange or troubling. In addition to your podiatrist, you might also consult with an experienced neurologist with knowledge of peripheral neurology. I pray you’ll find help and some measure of acceptance as you face into these challenges. I also pray you’ll find much for which to be thankful tomorrow, despite your current pain.
Elouise
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