Telling the Truth

connecting the dots of my life

Tag: Diane and ALS

In the presence of my enemies

It’s January 2006. I got to my office early, and was preparing to drive to the airport and catch a flight to Houston, Texas, to be with my sister Diane who was dying of ALS. She had opted for comfort care at home. No food and no medication. Just fluids and whatever would comfort her. This might be my last visit with her.

As I was about to leave my office, the phone rang. It was D. His premonitions were correct. The president of the university had just requested D’s resignation. So here it was, after several years of difficult personnel and budget issues.

No, D didn’t want me to cancel my flight. Instead, I flew to Houston in a stupor of spousal pain and rage, and gave D a call that evening. I continued as dean at the seminary. D was now free to follow his heart and eventually accepted a position with an international organization he’d helped birth.

Now it’s August 2008. I’m on a platform in the university gym along with other dignitaries. We’re in full regalia, ready for the fall convocation, installation of new faculty, and installation of the new chancellor of the university. The man chosen as the next provost, one of D’s friends and faculty colleagues, would be installed as the new chancellor. My job was to offer the installation prayer.

Inside, I was a mess. When the time came, I stood at the lectern facing the university faculty along with our seminary faculty. A number of university faculty had been unhappy with D’s administration. Some bitterly so.

On the outside I was a professional. On the inside I was in melt-down, shaking in my spirit and fully aware I was facing some university faculty who felt like enemies, along with many others who still grieved D’s resignation.

The newly minted chancellor stood next to me, and I invited everyone to stand with me for the prayer. It was simple and direct. And yes, it was a prayer for me and for D, not just for the new chancellor.

The prayer made use of Psalm 23. I couldn’t find the original script. It went something like this:

Because the Lord is your shepherd and knows everything about you, you will never lack for anything you need.
When you’re weary, may you find rest in green pastures, and follow your shepherd to pools of quiet waters.
When your soul is troubled, may you find restoration, and be guided in paths of right relationships that bring honor to your shepherd.

When you go through times of deepest darkness and despair, may you fear no evil;
Your shepherd will be with you, to find and comfort you no matter what happens.
When your shepherd prepares a banquet for you, and your enemies are looking on or sitting at the table, know that you are an honored guest in the Lord’s house, worthy of the best wine in the world.

Finally, remember that this goodness and mercy will be with you all the days of your life, and you will dwell in the house of the Lord, your good shepherd, forever.

Amen

I don’t understand all the dynamics of this event. Nonetheless, when I sat down I was calm inside, ready for whatever came next.

©Elouise Renich Fraser, 28 June 2018

Saying Goodbye to Mom | Memories

1996, Diane on bench, Montgomery house

Diane at our old house on the river, 1996

Regrets. This one grabbed my attention after I’d written my piece about Mom and Arnica Ointment. It all began in 1998 with a telephone call to let me know Mom had just had a stroke. The news immediately set off a firestorm of self-recrimination in me. Here’s why.

In late 1998, two months before Mom’s stroke, she and Dad flew to Houston to visit Diane and her family. I’d flown to Houston two days earlier–the first time I’d visited Diane since she had gone on a ventilator.

Even though I’d been there before, I wasn’t ready for the sound of this monster machine pumping, wheezing and making noise night and day. Add to that the agony of never hearing Diane’s voice again.

Two days later I drove to the airport to pick up our parents. Mom was in a wheelchair. She was wearing a new, unobtrusive microphone that picked up and projected her weak voice. Suitcases were piled high on a cart. Some filled with equipment to ease Mom’s increasing difficulties with post-polio syndrome.

Mom and Dad’s visit with Diane was painfully difficult. They didn’t seem to know how to relate to her, given dramatic changes in Diane’s ability to communicate.

Two years earlier in March 1996, Diane, her husband and daughter drove to Savannah for a small family reunion. We all knew Diane had ALS, and that this was her last trip to Savannah.

There were awkward moments, especially when Mom choked more than once while trying to swallow food. We all knew Mom wasn’t well. Nonetheless, the visit was happy, a nostalgic stroll down memory lane.

We drove downtown to see the old grade school we sisters attended, and where Mom taught kindergarten. We also drove out to our old house on the river, seen in the photo above, sandbar peeking through at low tide.

Diane’s body already showed limitations from ALS. Yet they were nothing compared to what she now lived with, just over two years later.

Here are a few excerpts from my Houston journal that describe what I observed in my parents in late 1998.

Silence and sadness and inability to speak. . . .Very uncomfortable to watch. . . .Neither of them [my parents] knowing what to say or how to act. Awkward.

The air was heavy with longing and with stunned silence. Not knowing what to do or how to relate. Sometimes projecting onto Diane thoughts and feelings that seemed to keep them from admitting their own sense of grief and helplessness.

I tried to help bridge the gap, but it didn’t work. I felt stuck. Unable to move things forward. Nothing about this visit felt normal—even though we were all dealing with the new normal.

My parents were there for five days. On the sixth day, Diane’s daughter and I drove them to the airport. I wasn’t sure how I would tell them goodbye. A lot of old buttons got pushed in me during this visit, and I was relieved that they were returning home.

Still, the thought of my parents negotiating the airport alone weighed heavily on my mind. I was about to suggest we park and go in with them when Mom spoke up. She said she didn’t want us to go in with them because she didn’t like goodbyes.

So we dropped them off at the curbside check-in and left them there. Two very frail human beings. As we drove away I had second thoughts.

Two months later I got the call about Mom’s stroke. I’d talked on the phone with her once since the Houston trip. It was my last verbal conversation with Mom.

For years I blamed myself for not parking and going into the terminal. Strangely, it seems Mom’s stroke and my arnica ointment helped ease the way for both of us–even though it was late.

Perhaps that’s how I discovered what I wanted to say to her, and how. Still, I prefer earlier goodbyes. And fewer regrets.

© Elouise Renich Fraser, 6 July 2015
Photo credit: DAFraser, March 1996

Scrub and Sing

just whistle while you work large

Here’s a happy follow-up to yesterday’s post. I’m guessing Amy Carmichael and I are not of similar temperaments when it comes to heavy daily burdens. Maybe you can identify with this poem better than I can! Read the rest of this entry »