Telling the Truth

connecting the dots of my life

Tag: End of Life Decisions

dispensable? | today’s thoughts

Yesterday I wrote about the dilemma of being a senior citizen during this pandemic. The issue is about ending lives in order to focus more care on younger people. As much as I despise pitting older people against younger people, the dilemma is real. A reader left a comment based on her own experience. Here’s a slightly revised version of my response.

Thanks for this comment. I hear your dilemmas, some of which are my own as well. I’m fairly clear about end of life decisions when we’re in our ‘normal’ mode (whatever that is!). If the issue is about doing “everything we can to extend life,” without meaningful markers to let us know what we’re after, or when we’ve arrived, I have no desire to extend my life.

I watched one of my sisters die of ALS — according to her own clear markers. They had nothing to do with the ventilator that helped keep her alive for ten years. They had to do with a simple question only she could answer. Am I still able to communicate (by any means possible) with my family and friends? If not, give me comfort care and fluids, but no meds or liquid food through my feeding tube.

Nonetheless, this coronavirus pandemic has shaken my confidence in nearly all my carefully worded directives. Right now I’m thinking that, with regard to the current pandemic, the marker might be the need for a ventilator. Then again, I haven’t put this in writing, or communicated it to those who will need to speak with and for me. I don’t believe that fighting death at all costs is helpful or fair to others. As a Christian, I believe Jesus died ‘voluntarily.’ I do not, however, believe that his decision was without angst or fear.

Your last line is so important: “However, we need to keep asking the questions to stay in the moment and on the right path with our faith in our Creator.” To that I can only say Amen! Not an easy path. I pray you’ll find some clarity for the present moment in history.

Please feel free to add your voice to this conversation.
Elouise

© Elouise Renich Fraser, 27 March 2020
Image of social distancing found at nytimes.com

I Worried | Mary Oliver

Here’s a prose poem from Mary Oliver, written in her later years. My brief comments follow.

I Worried

I worried a lot. Will the garden grow, will the rivers
flow in the right direction, will the earth turn
as it was taught, and if not how shall
I correct it?

Was I right, was I wrong, will I be forgiven,
can I do better?

Will I ever be able to sing, even the sparrows
can do it and I am, well,
hopeless.

Is my eyesight fading or am I just imagining it,
am I going to get rheumatism,
lockjaw, dementia?

Finally I saw that worrying had come to nothing.
And I gave it up. And took my old body
and went out into the morning,
and sang.

© 2010 by Mary Oliver
Published by Beacon Press in Swan: Poems and Prose Poems

Ironically, I found this poem in the front pages of Katy Butler’s book, The Art of Dying Well: A Practical Guide to a Good End of Life. It seemed a strange way to begin a book that helps navigate end of life decisions. Are you tired of working on this or that document, or making choices about things that may or may not happen? Just go out into the morning, and sing whether you think you can sing or not!

Which is exactly what I’m learning to do. No, it doesn’t come naturally. Worry comes naturally, sometimes dressed up as Work I must accomplish today. Not for a paycheck, but perhaps to ensure my peace of mind?

Yet even all the completed medical and other documents duly signed and filed in their appropriate places can never ensure full peace of mind. Sometimes I need to get outside my list-driven environment, enjoy the day and sing.

A calm mind. Most appropriate in a distressed world over which we have limited control.

Happy Monday to each of you, with a prayer for those living in distress this day and night, and calm courage to reach out as we’re able.
Elouise

© Elouise Renich Fraser, 2 September 2019
Photo found at pixabay.com

Death

Elephant in the room cartoon

The elephant in the room.
What I don’t want to talk about.
Especially with people I love.

Mortality sounds better.
Not so stark and final.
Wiggle room between now and then. Read the rest of this entry »

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