Powerful, Moving
Ambiguous, Interpretive
Heard, Hidden
Stripped, Caged
Imprisoned, Locked
Unheard, Unknown
Screaming, Silent Read the rest of this entry »
This is the last piece Diane wrote for her friends about ALS. I’ll respond next Friday. It’s a longer piece, definitely tough reading. Partly because it’s about her; mostly because it’s about us. Read the rest of this entry »
Is there anything ‘normal’ about ALS? If so, I haven’t yet discovered it. That’s ironic, since life itself is fraught with unexpected events, twists and turns. Yet we call it ‘normal.’ Why not ALS, too?
I learned early how to answer the inevitable question of my heart: Why me? Why my family? Read the rest of this entry »
I keep asking myself this question. When I wrote my About Me page, I knew who I was. But not yet as a blogger.
I’ll likely never meet most of you in real life. Furthermore, you come in all styles and sizes. An unmelted pot of humanity. Read the rest of this entry »
Houston Journal, 19 June 1998: Every time I come Diane is a little less alive in her bodily functions. This time feels very heavy—the hospital bed feels like the beginning of the end. On the TV today they were talking about an ALS cure by 2000. I don’t think Diane will make it that long. Read the rest of this entry »
I don’t have a clue how many of you are out there in The Great Beyond. I just know this blog lives and breathes by a two-way unspoken agreement: Read the rest of this entry »
Telling the Truth 