Trembling Heart | for Diane

by Elouise

Trembling heart sits on edge

Unseen by human eyes
she calculates in vain
the cost of knowing
or not knowing
looking for solace
if not release.

Piece by painful piece
mortal heaviness
strips proud bravado
as bare as truth standing defenseless
in the dock of human finitude,
calm, grieving and grateful.


Today I had a checkup with my electro-physiologist. I sat waiting, trembling inside, wondering what the doctor might discover in the data from Lucy, my pacemaker.

I toyed with the possibility of not keeping these appointments. After all, for generations before me there weren’t gadgets that could make visible the rhythms of our beating hearts. Maybe there are things it’s better not to know.

When I got home, I was still teary and pondering all this. I was also aware that February marks the death anniversary of Diane, my Sister #2. She lived ten years with ALS, enduring the loss of almost everything we take for granted as human beings. I’ve posted multiple pieces about and from Diane. You can read them by clicking on the category Dear Diane, at the bottom of this post.

I wrote this poem based on my experience today at the doctor’s office. However, it also applies to Diane’s situation. I’m proud to offer it in honor of her courage, good humor, honest emotions and struggles with God and with herself. Though she lost almost all voluntary capacities (such as speech and voluntary muscle movement), she never lost her mind or her great heart.

© Elouise Renich Fraser, 7 February 2017
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